Life with my little histamines
Jun. 18th, 2008 02:38 pmI am allergic to a cubic whackload of things that humans customarily eat: shrimp (and all its kin and a bunch of things that aren't particularly related to it besides, lobsters and langustinos and crabs and crayfish and sea cucumbers and snails and slugs and squids and octopodes), cashews, melon, wheat, lamb, mangos. I'm allergic to things that are naturally in the air we breathe: grass pollen, birch pollen, maple pollen, alder pollen, scotch broom, ragweed. I'm allergic to things that end up in the air we breathe because of industrial processes: gasoline fumes (which I sometimes perceive as smelling like expensive perfume), expensive perfume (which, yes, sometimes smells like gas fumes to my nose), cheap perfume, most soaps, most detergents, asphalt, formaldehyde. And if you burn almost anything, odds are good that I'll react to it, although so far I'm okay with charcoal (no lighter fluid, please) and well-aged firewood (but I won't stand directly in the smoke). Also cats, dogs, ferrets, and undoubtedly giant pouched Gambian rats.
It might seem as though the reasonable reaction to all these allergies -- so many allergies that my allergist stopped testing me, because what's the point if I react to everything? -- would be to live in a bubble. I don't want to do that. What I did for many years was to take Claritin (and then generic loratadine) before getting up every single day, reduce the amount of dust in my house, and rotate the foods I ate with a fanaticism usually associated with divine inspiration and funny hats. For good measure, I also wore funny hats.
This didn't keep me from being miserable when trees and grass had unnatural congress in my nose or from withdrawing hastily when innocent people who had washed their clothes in ordinary old detergent got too close to me, but it did allow me to interact with the world in a reasonably normal way most of the time. Sometimes I'd have to cancel an engagement because I just couldn't breathe outside my house (my house: land of air filters, unscented cleaning products, and no carpet), but most of the time you'd hardly know about the great big scarlet A for Allergic on my chest. That is, you know about my scarlet letter, because you're my friend, and the ushers at the symphony know, because they've helped me change seats when people sitting nearby are wearing clouds of cologne, but strangers passing on the street don't know.
Since February 2007, I've been going through a different allergy regimen. I no longer take loratadine. I don't rotate my foods. I still wear funny hats and I still try to keep the dust levels way down. In addition, I now get a shot once every two months. This shot is supposed to retrain my T-cells so that they don't overreact to ordinary harmless substances. In the few days around the shot, I eat an eccentric restricted diet (fish, venison, rhubarb, yams, the outside leaves of lettuce or cabbage, cooked carrots, cooked celery, sea salt, parsnips, white potatoes; that's it. No fat, no fruit). I stay in my room and avoid, not just everything that I know I'm allergic to, but everything that I could possibly become allergic to while my T-cells are being retrained.
During this period, I watch a lot of movies, because I can't read new books (could become allergic to the fresh ink), old books (might be musty), newspapers (too dusty), or magazines (fresh ink). I can read middle-aged books, and I have a supply of those carefully set aside, though sometimes their ink turns out to be too fresh because they haven't been read enough yet. Sometimes I really can't read the middle-aged books, because a few hours after the shot, I start going through allergy symptoms in rapid succession (hives, flushing, confusion), and I just can't concentrate on reading.
(I've gone on writing rather longer than I meant to. This is all introduction to reviews of the last set of movies I watched during an allergy purdah, as I prepare for my next allergy purdah. I'll post those reviews later.)
It might seem as though the reasonable reaction to all these allergies -- so many allergies that my allergist stopped testing me, because what's the point if I react to everything? -- would be to live in a bubble. I don't want to do that. What I did for many years was to take Claritin (and then generic loratadine) before getting up every single day, reduce the amount of dust in my house, and rotate the foods I ate with a fanaticism usually associated with divine inspiration and funny hats. For good measure, I also wore funny hats.
This didn't keep me from being miserable when trees and grass had unnatural congress in my nose or from withdrawing hastily when innocent people who had washed their clothes in ordinary old detergent got too close to me, but it did allow me to interact with the world in a reasonably normal way most of the time. Sometimes I'd have to cancel an engagement because I just couldn't breathe outside my house (my house: land of air filters, unscented cleaning products, and no carpet), but most of the time you'd hardly know about the great big scarlet A for Allergic on my chest. That is, you know about my scarlet letter, because you're my friend, and the ushers at the symphony know, because they've helped me change seats when people sitting nearby are wearing clouds of cologne, but strangers passing on the street don't know.
Since February 2007, I've been going through a different allergy regimen. I no longer take loratadine. I don't rotate my foods. I still wear funny hats and I still try to keep the dust levels way down. In addition, I now get a shot once every two months. This shot is supposed to retrain my T-cells so that they don't overreact to ordinary harmless substances. In the few days around the shot, I eat an eccentric restricted diet (fish, venison, rhubarb, yams, the outside leaves of lettuce or cabbage, cooked carrots, cooked celery, sea salt, parsnips, white potatoes; that's it. No fat, no fruit). I stay in my room and avoid, not just everything that I know I'm allergic to, but everything that I could possibly become allergic to while my T-cells are being retrained.
During this period, I watch a lot of movies, because I can't read new books (could become allergic to the fresh ink), old books (might be musty), newspapers (too dusty), or magazines (fresh ink). I can read middle-aged books, and I have a supply of those carefully set aside, though sometimes their ink turns out to be too fresh because they haven't been read enough yet. Sometimes I really can't read the middle-aged books, because a few hours after the shot, I start going through allergy symptoms in rapid succession (hives, flushing, confusion), and I just can't concentrate on reading.
(I've gone on writing rather longer than I meant to. This is all introduction to reviews of the last set of movies I watched during an allergy purdah, as I prepare for my next allergy purdah. I'll post those reviews later.)
no subject
Date: 2008-06-19 01:21 am (UTC)And are you allergic to R.O.U.S.'s?
no subject
Date: 2008-06-19 01:50 am (UTC)The enzyme comes from garden snails, and the treatment was discovered by accident while trying to cure something else altogether. This is a whacka-whacka treatment, and if it didn't work, I'd make fun of it. Come to think of it, I do make fun of it, even though it works and improves my life.
Rodents Of Unusual Size? Probably, but I suspect that if they showed up in my life, there would be other problems besides the allergies.
no subject
Date: 2008-06-19 01:55 am (UTC)no subject
Date: 2008-06-19 04:33 am (UTC)no subject
Date: 2008-06-19 02:15 am (UTC)I list my food allergies on the first entry in my LJ, but I don't bother with the environmental ones. Allergic to everything, yes.
I need to check this out and call my allergist.
Thank you.
no subject
Date: 2008-06-19 04:40 am (UTC)There aren't a lot of allergists who give this treatment. It's either totally loony tunes, or cutting edge. Since it works for me, I vote that it's cutting edge. You do have to be disciplined to make it work, but with your list of allergies, it's probably as worthwhile for you as it is for me. The allergy tech at my allergist's office says she isn't disciplined enough to use this treatment, even while she administers it to others all the time. What I think this means is that she isn't as bothered by her allergies as I am by mine. It's work to create the environment in which the treatment has a chance to be effective, but it's so much more work just to stay alive all the time, just to decide whether it's time to use the epi-pen or take Benadryl or just wait it out. I know you know what I mean.
I figure that even if it didn't work for the reasons it's supposed to work, I create a little window every month in which I stay in as allergen-free an environment as possible, and that has to be good for lowering the allergy-bucket.
no subject
Date: 2008-06-19 03:59 pm (UTC)no subject
Date: 2008-06-19 02:35 am (UTC)And I thought my life, combined with ihgreenman's, was complicated...
no subject
Date: 2008-06-19 04:41 am (UTC)no subject
Date: 2008-06-19 07:50 am (UTC)I'm sorry to hear that you have to put up with that particular set of complications.
no subject
Date: 2008-06-19 02:24 pm (UTC)no subject
Date: 2008-06-19 05:40 pm (UTC)Myst was made of Velcro, though.
no subject
Date: 2008-06-19 03:09 am (UTC)no subject
Date: 2008-06-19 04:43 am (UTC)no subject
Date: 2008-06-19 03:40 pm (UTC)(I'm a big fan of lists, and your lists are just as funny as your hats.)
no subject
Date: 2008-06-19 05:07 pm (UTC)no subject
Date: 2008-06-19 04:52 am (UTC)no subject
Date: 2008-06-19 02:19 pm (UTC)no subject
Date: 2008-06-19 04:54 am (UTC)I'd be happy to lend you some of my movies, if you think that would work.
no subject
Date: 2008-06-19 02:21 pm (UTC)no subject
Date: 2008-06-19 06:05 am (UTC)Also: we knew someone who was very allergic to American perfume - couldn't walk through the ground floor of most big department stores without nearly going into anaphalactic shock (I'm sure that's spelled wrong).
But: French perfume? no problem. They use a different base or something, and it didn't bother her (she did some postgrad work in Lyon, so she could tell...)
no subject
Date: 2008-06-19 02:18 pm (UTC)Yes, this magic wonder allergen regimen is helping. I am able to tolerate quite a lot of inhaled allergens without getting ill now. I can tolerate the smell of coffee without gagging now (coffee! One of the world's best smells, but I don't think I'll ever enjoy the smell again after years of gagging). I can stay in a hotel without becoming incoherent with allergy brain-fog. I can't act like a normal human being, but I feel better than I have in years, and I no longer take loratadine.
no subject
Date: 2008-06-19 07:57 am (UTC)I too react to ink!
And soap! (laurel and laureth sulfates)
And wheat!
But I'm glad I can have shrimp and cashews, preferably together. :)
no subject
Date: 2008-06-19 02:11 pm (UTC)I know someone who felt odd after eating nuts, and while she was debating whether she felt that odd, she passed out. Fortunately, she revived and was able to call 911. One of the many problems with allergies is that if they don't actually kill you, you can think, this must be all in my head. I shouldn't make a fuss. It's not that bad.
I make a fuss. I'm still alive. Gosh, if I'm still alive, I must be making too much of a fuss....
no subject
Date: 2008-06-19 03:04 pm (UTC)This is precisely my issue with my wheat sensitivity. It is very easy to just eat what's available around me that contains wheat and accept the consequences. But I have to remember the risk is that the consequences could get much worse without warning.
My allergies are similar, though not so many or severe as yours.
Soaps
Fragrances (shampoos especially it seems)
Cigarette smoke
Tomatoes (raw only)
I have just stopped taking the Loratadine because I found I was too dry all the time. So far I haven't had a problem, but it could be just luck.
Good luck with this program, it sounds as though it's working well enough for you to bear the discomfort it causes you in the short term. I hope it really works well in the long term.
no subject
Date: 2008-06-19 06:31 pm (UTC)Good luck back at you.
no subject
Date: 2008-06-19 09:39 pm (UTC)I tend to avoid oats because I have occasionally reacted to them also, but if you know the source, perhaps you can avoid the cross-contamination that is the issue with oats.
Wow!
Date: 2008-06-19 05:57 pm (UTC)Re: Wow!
Date: 2008-06-19 09:21 pm (UTC)Thanks
Date: 2008-06-19 07:07 pm (UTC)Re: Thanks
Date: 2008-06-19 09:23 pm (UTC)no subject
Date: 2008-06-20 06:43 am (UTC)Glad the shots are working for you.
no subject
Date: 2008-06-20 08:39 pm (UTC)no subject
Date: 2008-07-01 05:39 pm (UTC)