kate_schaefer: (Brains)
[personal profile] kate_schaefer
Before I start my dramatic story, I'll tell you the end of it: I'm fine. I have no need for dramatic tension here.

Last Thursday, Glenn and I were on our way home from the Seattle Symphony (perfectly fine performance of Smetana's Bartered Bride overture, world premiere of David Stock's cello concerto which I would rather not have heard even though the Symphony did a fine job and boy wonder Joshua Roman's solo stint was superb, and a Rachmaninoff that even Glenn, fan of Rachmaninoff that he is, concedes is the sort of thing that gives Rachmaninoff a bad name), when allover sudden it felt like three small bombs went off in my head: boom. Ka-boom. Ka-boom!

It was the most amazing head pain I'd ever experienced. It made the old Excedrin jackhammer seem like understatement. It made me yell, "Ow ow ow," and rip off my glasses, as if changing the way I saw the world would make the pain go away.

And then the pain did go away, and I felt mostly okay. There was a dull, residual ache, but it was as nothing compared to the cluster bombs of doom.

Fortunately, Glenn was driving, as I might have driven us into a wall just to make the pain stop. We went home, and I called a triage nurse, who asked a lot of questions and passed me on to a triage doctor, who told me to get the hell over to an emergency room right away, and he would call them to let them know I was coming.

Oh.

As anyone who has ever been to an emergency room knows, the rest of the night was alternately too exciting and very dull. Vital signs, blood samples, and a cat scan, followed by a doctor trying to persuade me to have a spinal tap as well. ("Your cat scan was normal, so you don't have a brain tumor and you're probably fine, but because cat scans miss about 1-2 percent of the subarachnoid hemorrhages, we want to do a lumbar tap just in case.") I turned down the spinal tap, because at that point the doctor was kinda reeling from tiredness, and the phlebotomist kinda scared me by reaching across the room when she had a needle in my arm, and I wasn't actually thinking too well. If you're ever in that position, say yes to the spinal tap, okay?

It was close to five in the morning by then, so we went home and slept for a few hours. I got up and called my doctor, and Googled while I was on hold.

It turns out that about 25 percent of people who have thunderclap headaches have them because they're having sentinel bleeding, and later on -- a few days or a few weeks later -- they have massive aneurysms, and lots of them die.

My doctor told me I was probably fine, but she checked in with her neurologist and radiologist friends (she says the main thing she learned in med school was how to reach anybody on the phone at any time; I notice that she learned a bunch of other things, too), and scheduled me for an MRI on Monday. That meant that I got to spend the weekend alternating between cheerful certainty that I was fine and morbid certainty that I'd die horribly and soon.

The MRI was painless and dull but very very loud. I knew immediately that I was fine, because the MRI tech (who had already said that he couldn't discuss the results with me) was cheerful and joking rather than solemn as he showed me pictures of my brain. I asked if he was going to send them to my doctor, and he said she'd just asked for a report, no pictures. I asked if I could have the pictures, and he said, sure. He gave me the CD of pictures from the cat scan, too.

And that's where I got the icon for this post. I don't recommend this technique.

I asked my doctor if all these tests gave her a clue about why I had the appalling headache on Thursday, or if all we had learned was that I wouldn't die from it. She shrugged her shoulders (I could see it even without the picturephone) and said, Sometimes heads just hurt.
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Date: 2009-06-04 05:04 am (UTC)
From: [identity profile] holyoutlaw.livejournal.com
Glad to hear you're okay.

I had an MRI last year, and wanted to make an animated GIF out of it, but didn't know how. Oh well.

(And here you thought I was Mr. Image Processor. Hah!)

Date: 2009-06-04 03:47 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks, Luke. Yes, I did think you were Mr. Image Processor. My illusions are dashed.

I don't want to make an animated GIF, but I can see how that would be cool, because the pictures are stored in sets you can scroll through rapidly from side to side or front to back or (for the big veins) rotating. I think I'll print a selection out on fabric and make some clothing art.

Date: 2009-06-04 05:04 am (UTC)
From: [identity profile] athenais.livejournal.com
My god. I'm glad everything is okay, but what a dreadful experience.

Date: 2009-06-04 04:05 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks, Lucy. You know, while it was going on, it was really awful and scary, but afterward, I think, well, I was okay all the time. There was nothing wrong, so why did I have to have all those tests? Why did I make a fuss? Did it really hurt that much? My past self can't reach forward to slap my current self and say, Yes, it did. Wanna feel it again?

Date: 2009-06-04 05:22 am (UTC)
From: [identity profile] jackwilliambell.livejournal.com
Oh, wow. Kate, I'm so glad you're OK!

And I'm so sorry you had to go through all that to find you were OK.

Date: 2009-06-04 04:06 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks, Jack. See you at Vanguard this weekend?

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From: [identity profile] jackwilliambell.livejournal.com - Date: 2009-06-04 04:16 pm (UTC) - Expand

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From: [identity profile] kate-schaefer.livejournal.com - Date: 2009-06-04 05:17 pm (UTC) - Expand

Date: 2009-06-04 05:22 am (UTC)
From: [identity profile] e-bourne.livejournal.com
1. SO glad you are OK, head stuff is very, very scary. Not that anyone cares, at this point, I fall asleep in the MRI machine, which is odd because it is loud, but sleep is one my reactions to stress, and they are very dull.
2. Aneuryisms are way scary. SO glad you are OK. I feel like I should say that several more times.
3. I have an inappropriate crush on Joshua Roman (insert Mark rolling eyes). We saw him several times while he was playing with the Seattle symphony and he is pretty fab. Although, much like Kai, he does NOT play well with other boy geniuses. That was pretty hilarious to watch.

Date: 2009-06-04 04:21 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
1. The MRI tech mentioned that some people fall asleep in the MRI as he strapped my head so I wouldn't move if I fell asleep. I thought that was very odd, given how loud it is in there, but it makes more sense as a defensive reactio to stress.

2. Thank you.

3. Me, too, although he's less of a movie star idol now that his hair is too short to require frequent head-tossings to get it out of his eyes.

Date: 2009-06-04 05:27 am (UTC)
From: [identity profile] vgqn.livejournal.com
So glad to hear you're okay, though I wish there had been a better explanation in the end.

What a very fine icon! Now everyone will want one. (I should have asked for a copy of my bunion screw that was unscrewing itself!)

Date: 2009-06-04 04:25 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks. Yes, I'd like a better explanation, too, but I'll settle for being okay and not needing brain surgery.

A foot x-ray with a loose screw would also make a fine icon. You could just go for an icon of yourself having a lovely time in Italy, demonstrating that your feet work well now.

Date: 2009-06-04 05:29 am (UTC)
From: [identity profile] chiefwirehead.livejournal.com
I get stabbing head pains every once in a while, but they stab me once or twice, and that's the end of it. Yours sounds a lot longer than that (or I bet it certainly seemed a lot longer than that). Ah, something new to worry about.

I'm not good at worrying about serious stuff, I'm too much of an optimist.
At least I don't have to worry about you.

Date: 2009-06-04 04:30 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
It didn't really last all that long; a few seconds each time, with the whole episode lasting under ten minutes. It was the severity, and the fact (up till now) I have not been a headache kind of guy. Backache, sure. Rib pain, yup. Vague malaise or whininess about mildly upset stomache, I'm there. But headache? Historically, just not me.

There are enough things to worry about without worrying about me.

Date: 2009-06-04 05:38 am (UTC)
From: [identity profile] lasirenadolce.livejournal.com
Oh my goodness! So sorry you had to go through all of that, but I'm so glad you are okay.

Date: 2009-06-04 04:32 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks, Adrienne. That was what I meant when I said I was preoccupied earlier this week. It seemed like the best word to use...

Date: 2009-06-04 06:06 am (UTC)
From: [identity profile] singingnettle.livejournal.com
Huhn. Well, if 25% of the time they foreshadow aneurysms, 75% of the time, they don't.

Sounds like a scary time. I'm glad they didn't see anything to worry about. Being me, of course, I'd probably continue to worry, but that's because I make no sense.

I fall asleep in MRIs, too.

Date: 2009-06-04 04:40 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Okay, so that's two people I know who fall asleep in MRIs despite the noise and the vibration, and both of you currently live in West Seattle. Coincidence? Um, yes.

Yeah, I'm interested in all the stuff in the 75% as well, but I don't think I'll be able to find out what it was. All of the scary stuff was ruled out in my case: brain tumor, meningitis, pituitary tumor, pituitary bleed, and several other things. I was able to rule out one of the other common causes of such headaches, orgasm, all by myself without any tests.

Date: 2009-06-04 06:27 am (UTC)
ext_28681: (Default)
From: [identity profile] akirlu.livejournal.com
Yikes! Sorry for the scary adventures, especially the bits with the morbid dread. I'm very glad it wasn't anything worse, too.

Date: 2009-06-04 04:45 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks. I believe I minimized the morbid dread, but it's impossible to banish it altogether. My doctor was very reassuring that my chances were good, but then she followed that up with a story of one of her other patients who had a surprise brain tumor found through a sudden onset headache. Since she told the story after a brain tumor had already been ruled out, it wasn't too scary, but it was still quite scary enough.

Sometimes It Just Hurts

Date: 2009-06-04 06:49 am (UTC)
From: [identity profile] ladyjestocost.livejournal.com
Had something similar happen to me about oh, 6 or 8 years ago. Was sitting down to dinner when all of a sudden it felt as if someone were trying to pith me. Went to the emergency room at the UW where the triage nurse after determining I wasn't 'stroking out' on her, commented that I wouldn't believe how many people showed up in ER with their first migraine.

The intern wanted to run a spinal tap on me too. Since by the time he got around to doing that he'd already tried to diagnose me with Graves' disease (yes, I look like I might have it - and you just wrote down on your little pad that I'm taking meds for the exact opposite problem) and it was a very new intern, I declined. My head had quit hurting by then too.

Since then I've had some more (although without the amazing stabbing pain) and we're associating them with sage, maybe. So I'm not eating sage rubbed stuff anymore.

I always feel 'fragile' for a day or two afterward.

Re: Sometimes It Just Hurts

Date: 2009-06-04 04:52 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
You know, if I have more headaches like that, I'll want to check whether I've acquired a helicobacter pylori infection, since h. pylori is suspected of being the cause of some migraines. If not, well, not. The association with sage is very interesting.

Date: 2009-06-04 07:12 am (UTC)
From: [identity profile] kalimac.livejournal.com
Spinal tap? Massive aneurysms? This is not what we wanted to have to hear. I trust the MRI got whatever the spinal tap would have gotten?

But before we got there, your story caught my eye for another reason. That must have been a mightily poor performance of one of my favorite Rachmaninoff works - sadly, I've heard it played badly before, so I know it's possible.

Date: 2009-06-04 04:59 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Yes, thanks. The MRI catches far more than the spinal tap would, including (said the ER doc) some stuff that turns out not to be a problem, so I'm very glad it all came out clean.

I don't think the Rachmaninoff was played badly. The audience overall was very enthusiastic, and the Times reviewer found it satisfying. I do not at all care for most Rachmaninoff, so it's not surprising that I didn't like it.

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Date: 2009-06-04 08:10 am (UTC)
From: [identity profile] lintninja.livejournal.com
Yikes!!!! So glad that you are ok. Not a fun way to spend time. I bet Glen was pretty shaken up too. Take it easy and no more headaches!

Date: 2009-06-04 05:00 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks. No more headaches is my plan for the week, the month, the year, the lifetime. I intend to be robust and cheerful and hearty, haha! so that Glenn won't have to worry about me.

Date: 2009-06-04 08:32 am (UTC)
From: [identity profile] stephanieburgis.livejournal.com
I'm so glad it's all turned out okay, but so sorry you had to go through that! ER visits are the worst, especially late at night. *hugs*

Date: 2009-06-04 05:02 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks! I've never had to go to the ER on my own behalf during the daytime. I was slightly surprised when I took my granddaughter there once for some stitches when she cut herself rather than the cheese on the cheeseboard. It wasn't dark outside when we went in, it wasn't dark outside when we came out; could that really have been the ER? We didn't have to wait long, either.

Date: 2009-06-04 09:38 am (UTC)
From: [identity profile] samildanach.livejournal.com
Good heavens, I'm glad you're okay. Getting to see a picture of your own brain is a pretty neat consolation prize, though!

Date: 2009-06-04 05:04 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Yeah. It astonished me that most people don't want to look at the brain pictures. I mean, jeez louise, people, cool science with your own brain as the subject! Where is your curiosity?

Date: 2009-06-04 10:37 am (UTC)
From: [identity profile] davidgoldfarb.livejournal.com
Sympathies. Glad everything worked out.

(Tired. Posting fragments. Should go to bed.)

Date: 2009-06-04 05:04 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Fragments good. Sleep better. Thanks.

Date: 2009-06-04 12:23 pm (UTC)
From: [identity profile] accordingto-ada.livejournal.com
Oh my goodness! I'm so glad it turned out okay, but what a scare for you and all of us as we read about your ordeal.

I had an MRI of my head too when I had some bouts of vertigo. To me it was like some weird percussion concerto. The neurologist told me they didn't find anything. At least with yours, they found a brain.

Date: 2009-06-04 05:07 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
See, that's where demanding documentation really helps, because by the time my doctor told me the MRI was clean, I knew she meant my brain was clean, even without being washed.

Are you still suffering from the vertigo?

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From: [identity profile] accordingto-ada.livejournal.com - Date: 2009-06-04 05:59 pm (UTC) - Expand

Date: 2009-06-04 01:21 pm (UTC)
From: [identity profile] badger2305.livejournal.com
Glad to hear you are okay - but obviously this is something to track.

Date: 2009-06-04 05:08 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks. I hope not to track it; that is, my plan is for this to be a one-time event. We'll see how the plan unfolds.

Date: 2009-06-04 01:45 pm (UTC)
From: [identity profile] theclownhunt.livejournal.com
I'm glad you're okay, Kate. Ditto on the loudness of MRIs.

Date: 2009-06-04 05:11 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks, Chris. I'd thought of MRIs as a big deal (which they are) that hardly anybody I knew would be likely to have had before (utterly wrong on that point).

Date: 2009-06-04 02:00 pm (UTC)
From: [identity profile] rivka.livejournal.com
Oh my gosh!

Really glad you're okay.

Date: 2009-06-04 05:12 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks. What a fine ouch! icon.

Date: 2009-06-04 02:15 pm (UTC)
ext_73228: Headshot of Geri Sullivan, cropped from Ultraman Hugo pix (Default)
From: [identity profile] gerisullivan.livejournal.com
Eep. Thanks for the okay note at the beginning of it all. And good for you for following up with the triage nurse, ER, doctor, etc.

That part about not thinking too clearly when sick is one I am intimately familiar with. I was proud of myself for calling [livejournal.com profile] benyalow during my third gallbladder attack to talk through my thoughts and reasoning with him for an outside confirmation that the path I was on bore some resemblance to rationality.

Years and years ago I had what may well have been a migraine. At the time, all I could think was that my symptoms matched those of a a co-worker's sister who had a massive brain tumor. I didn't call 9-1-1 or anything; I laid there thinking, "it probably isn't a brain tumor and if it is, at least everything will be over soon." Umm, that was suboptimal at best.

This is one darned impressive icon. I hope there turns out to be no cause for it to be updated in the near or distant future.

Date: 2009-06-04 05:14 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks. You are clearly starting to recover, your own self, since you're sitting up and reading LJ. Keep on getting better.

Are you going to take pictures of your gallstones? Are they at all interesting to look at, or just evidence that you used to have a gallbladder?

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From: [identity profile] gerisullivan.livejournal.com - Date: 2009-06-05 07:13 pm (UTC) - Expand

Date: 2009-06-04 03:20 pm (UTC)
From: [identity profile] tinaconnolly.livejournal.com
wow! crazy story. Glad you're okay.

Date: 2009-06-04 05:14 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks. Middle age is entertaining in odd and not always convenient ways.

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From: [identity profile] accordingto-ada.livejournal.com - Date: 2009-06-04 06:07 pm (UTC) - Expand

Date: 2009-06-04 04:10 pm (UTC)
From: [identity profile] vylar-kaftan.livejournal.com
Holy shit. Glad you're okay. I should email you my story...

Date: 2009-06-04 05:15 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks. I'm always entertained by your stories, though sometimes I have to go into the next room to be able to tolerate reading them, leaving my eyeballs behind on their little stalks.

Date: 2009-06-04 08:12 pm (UTC)
From: [identity profile] mcjulie.livejournal.com
Wow, I'm glad you're okay, that sounds like a horrible experience.

Date: 2009-06-04 10:37 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks. It's certainly not something I want to repeat any time.

Date: 2009-06-05 05:12 am (UTC)
From: [identity profile] therinth.livejournal.com
Holy cow Kate!

I'm very glad everything turned out all right.

Date: 2009-06-05 02:39 pm (UTC)
From: [identity profile] kate-schaefer.livejournal.com
Thanks, Erin. I thought about you while I was in the ER waiting room. At least I didn't set myself on fire, I thought.

Date: 2009-06-08 06:26 am (UTC)
From: [identity profile] serendipoz.livejournal.com
Glad to know you're okay. I know the doctor/hospital stuff was likely upsetting and certainly frustrating and long, but appreciated.

I've had one friend just fall over with an aneurysm and be gone the two hours later (discovered by his wife later in the day.)

I'd guess we all (individually) will have something odd happen and then take comfort that it wasn't worse, or find out it was. Sometimes heads just hurt.

(Myself, surprisingly am now recovering from 3 pulmonary embolisms discovered after a normal operation last fall. And all things considered the doctors think I'm doing fine, and I feel fine, but golly, sometimes you run into that 1% failure, ...)
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